Dear friends, We are holding this space for “transforming thoughts." Some are written specifically for the dementia community. All are included here because the message is applicable to caring for someone living with dementia. The messages speak to the monumental need for societal change in our approach to caregiving of [...]
Elisabeth Kübler-Ross (July 8, 1926 – August 24, 2004) was a Swiss-American psychiatrist, a pioneer in near-death studies, and author of the internationally best-selling book, On Death and Dying (1969), where she first discussed her theory of the five stages of grief, also known as the "Kübler-Ross model." Source: Wikipedia In 1969, Elisabeth Kubler-Ross [...]
“Our findings highlight the fact that high-quality care involves not only increased staffing, but also specialized training in practices proven to be effective in managing the complexities of this condition, as well as providing a secure environment and maintaining staff consistency,” Mukamel says. “Further research is required to identify specific areas [...]
People with dementia often face a rapid rise in unpaid and paid home care, and major erosion of net worth plus increases in personal spending, researchers report. Posted by Kara Gavin, University of Michigan A new study shows just how much damage dementia does to a person’s bank account—as [...]
Best of 2023 dementia research - the Comprehensive Dementia Justice Report Knowledge is power, and understanding the issues at hand is the first step towards making a difference. The Dementia Justice Report offers an in-depth look into the challenges and systemic gaps faced by those living with dementia and their [...]
Through her continued advocacy against the violation of human rights for people living with dementia, Kate Swaffer is protecting others from living through the experiences that our loved ones, family, and friends have endured. Kate Swaffer is more than just a name behind the Dementia Justice Report released in 2023. [...]
The report found many common beliefs amongst all stakeholders about the need for reparations. This includes recognition of the human rights abuses faced by people living with dementia and support for concrete steps to address these issues. Behind every impactful report is a team of dedicated individuals, and in [...]
Linda and Kate's work was published in The Health and Human Rights Journal at Harvard University in December 2022. The article which follows is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits unrestricted non-commercial use, distribution, and reproduction. Reparations for [...]
It's not about moving on. It's about moving forward - by shedding light on dementia care realities in 2023. Authors: Linda Steele, PhD, and Kate Swaffer, PhD candidate 2023 Breaking News: The research report, "Reparations for people with dementia in aged care," 🎉 has arrived, unveiling a sobering look at dementia [...]
People may be more likely to experience optimism if they enjoy good health and a good quality of life. But optimism isn’t confined to those who are doing well. Studies suggest that it is a genetically heritable trait and that it can be cultivated through concerted interventions. Author: Judith Graham [...]
