Creating Community

Featured Voices in Caregiving
No Longer a Private Family Matter: Conversations with professionals transformed by family caregiving

Bella DePaulo, PhD, agreed to help us set the stage and lead the conversation for our series of interviews on the topic, "No Longer a Private Family Matter: Conversations with professionals transformed by family caregiving." She is a social scientist, author, blogger, teacher, speaker, and consultant who has authored and [...]

Moving forward: Featured Voices
To friends and readers who may have wondered why I suddenly disappeared from Facebook

"Facebook suspension" - What...?! In late March, both my personal Facebook account and my ABeautifulVoice.org page were suspended without warning or meaningful explanation. After considerable research and consultation with experienced technology professionals, I learned that this type of abrupt suspension has happened to many others as well — often through [...]

The silence of the system
Journalist Kelli Maria Korducki discusses “The Daughterhood Penalty” in America’s Caregiving Crisis

America's older adult population is set to experience massive growth in the coming years. Journalist and author Kelli María Korducki is exploring the imbalance and disproportionate financial, emotional, and professional burdens falling on women who care for their aging parents. Korducki joins Michel Martin to discuss the failures of America's [...]

A landmark human rights treaty
Inclusion is Not Optional. It is a Human Rights Commitment

"People with disabilities have the right to liberty, security, and freedom from cruel or degrading treatment." -  The UN Convention on the Rights of Persons with Disabilities (CRPD)                                              [...]

Featured Caregiver - Neal Shah
63 million caregivers get nothing. This former hedge fund manager is fighting back

Neal K. Shah left a $250 million hedge fund to fix a system that failed his own family. After caring for his grandfather through dementia and his wife through a multi-year cancer battle, he saw firsthand what 63 million family caregivers already know: the care system in America is completely [...]

The impact of stigma & discrimination
Dementia and Suffering

  Author: Kate Swaffer Kaurna Country   The discourse of suffering has long been a topic of lived/living experience dementia advocates and activists. Most people who’ve followed me here for a while now will know I have been very vocal about it, and how it is harmful to people living with a dementia [...]

Dementia is not a tragedy
Emotional? Yes. Tragedy? No. My mom, Tom Kitwood, and me

Art by Almeta Fridley. What a joy to watch her work! Author: Mary Fridley Faculty, East Side Institute . . . Founder, The Joy of Dementia (You Gotta Be Kidding!) . . . Coordinator, Reimagining Dementia: A Creative Coalition for Social Justice February 3, 2026 Republished with permission by Mary [...]

365 Ways to Say I Care
The NOVELTY EXPLAINER – Part I: What This Is

🌱 What Makes 365 Ways to Say I Care Different Most resources about dementia focus on decline — and too often, they begin at the end. 365 Ways to Say I Care was created to do something different. This living directory is built on a simple but radical truth: Life [...]

Still, after decades of research...
Dementia Stigma and Discrimination: A Rights-based Perspective

Author: Kate Swaffer © 2026 Despite decades of research, and public awareness efforts — including the widespread proliferation of the non-inclusive dementia-friendly campaigns— people diagnosed with a dementia continue to experience pervasive issues including stigma, structural discrimination, and social exclusion. These outcomes persist not because of a lack of awareness [...]

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