Creating Community

A landmark human rights treaty
Inclusion is Not Optional. It is a Human Rights Commitment

"People with disabilities have the right to liberty, security, and freedom from cruel or degrading treatment." -  The UN Convention on the Rights of Persons with Disabilities (CRPD)                                              [...]

Featured Caregiver - Neal Shah
63 million caregivers get nothing. This former hedge fund manager is fighting back

Neal K. Shah left a $250 million hedge fund to fix a system that failed his own family. After caring for his grandfather through dementia and his wife through a multi-year cancer battle, he saw firsthand what 63 million family caregivers already know: the care system in America is completely [...]

The impact of stigma & discrimination
Dementia and Suffering

  Author: Kate Swaffer Kaurna Country   The discourse of suffering has long been a topic of lived/living experience dementia advocates and activists. Most people who’ve followed me here for a while now will know I have been very vocal about it, and how it is harmful to people living with a dementia [...]

Dementia is not a tragedy
Emotional? Yes. Tragedy? No. My mom, Tom Kitwood, and me

Art by Almeta Fridley. What a joy to watch her work! Author: Mary Fridley Faculty, East Side Institute . . . Founder, The Joy of Dementia (You Gotta Be Kidding!) . . . Coordinator, Reimagining Dementia: A Creative Coalition for Social Justice February 3, 2026 Republished with permission by Mary [...]

365 Ways to Say I Care
The NOVELTY EXPLAINER – Part I: What This Is

🌱 What Makes 365 Ways to Say I Care Different Most resources about dementia focus on decline — and too often, they begin at the end. 365 Ways to Say I Care was created to do something different. This living directory is built on a simple but radical truth: Life [...]

Still, after decades of research...
Dementia Stigma and Discrimination: A Rights-based Perspective

Author: Kate Swaffer © 2026 Despite decades of research, and public awareness efforts — including the widespread proliferation of the non-inclusive dementia-friendly campaigns— people diagnosed with a dementia continue to experience pervasive issues including stigma, structural discrimination, and social exclusion. These outcomes persist not because of a lack of awareness [...]

Enhancing cognitive health
Creativity is good for the brain and might even slow down its ageing – new study

Creative experience might enhance brain health, which could slow down the brain’s ageing. That’s according to a study by a group of international scientists across 13 countries. They found that creative activities, like dance classes – the tango proved particularly effective – or art classes or music lessons or a [...]

A DRAMATIC reduction in risk
Study: Small Amounts of Moderate to Vigorous Physical Activity Are Associated with Big Reductions in Dementia Risk

Findings suggest that even frail older adults may benefit from a little exercise We are all aware that physical activity and movement benefit brain health. A recent study from Johns Hopkins Bloomberg School of Public Health now provides us with dramatic findings about reducing the possibilities of developing dementia. Findings: [...]

Our soul purpose
Research findings, media stories and articles to inspire new narratives about people living with dementia

#Views to date: 970

Our mission is to amplify my mother's voice in shaping a more compassionate conversation around brain health[...]

Healing the human spirit
The International Writers Center Reminds Us of Our Humanity 

#Views to date: 764

I have often quoted Bill Thomas, MD, geriatrician, in prior blog posts. His words first crossed my desk[...]
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