Caregivers

Featured Voices Speaking Out
No Longer a Private Family Matter: A conversation which challenges assumptions affecting caregiving

Our interview with Dr. Joan DelFattore is a must-read! From her phenomenal personal recovery to uncovering outdated and discriminatory policies directing the quality of our care, how it is provided, and by whom! This is tremendously important research on inequities in the health care system which are based on stereotypes [...]

365 Ways to Say I Care
Way #15: Splash Water on Hands and Feet on a Hot Day

Why this helps: On a sweltering summer afternoon, the simple sensation of cool water can be deeply calming and refreshing. This activity is especially helpful if your loved one is restless, agitated, or overheated. The change in temperature is a powerful sensory input that can interrupt a cycle of anxiety [...]

Ms. Digest for Dementia Carers
No Longer a Private Family Matter: The caregiving crisis hiding in plain sight — and what it’s really costing American families

  Somewhere tonight, a daughter is learning to insert a feeding tube using YouTube. Her mother, who once taught her how to tie her shoelaces, no longer recognizes her face. The home health aide hasn't shown up in three days.   That image stopped me mid-scroll. Not because it was [...]

Living in a grief illiterate world
We don’t move on… We move forward

David Kessler is an American author, public speaker, and grief expert. He has published many books, including two co-written with psychiatrist Elisabeth Kubler-Ross, MD.  Looking to him as a leading grief expert when seeking support, we can be comforted knowing he is well-informed and providing reliable information on the topic. [...]

365 Ways to Say I Care
Way #13: Read a Short Summer Story Aloud

  Why this helps: Reading aloud is different from poetry (Way #2). A short story—just a few pages—offers a narrative arc, characters, and a gentle plot. This can be more engaging for some people while still being low-pressure. Summer-themed stories about beaches, gardens, or family gatherings can spark seasonal memories.  [...]

Featured Caregiver - Neal Shah
63 million caregivers get nothing. This former hedge fund manager is fighting back

Neal K. Shah left a $250 million hedge fund to fix a system that failed his own family. After caring for his grandfather through dementia and his wife through a multi-year cancer battle, he saw firsthand what 63 million family caregivers already know: the care system in America is completely [...]

365 Ways to Say I Care
Way #11: The Birthday Song Calendar Tradition

"A friend hears the song in my heart and sings it with me when my memory fails." (Author unknown)         Why this helps: For someone living with dementia, family connections can feel distant and abstract. A regular ritual of acknowledging birthdays—through song, a phone call, or simply speaking [...]

Too important to not share!
Foods that prevent disease according to a 30-year Harvard study

  Harvard researchers followed 105,000 people for 30 years and only 9% reached age 70 free of chronic disease, cognitive decline, and depression. Their secret wasn't genetics or supplements. It was consistently eating real food: fruits, vegetables, whole grains, nuts, legumes, and unsaturated fats with almost no ultra-processed food or [...]

The impact of stigma & discrimination
Dementia and Suffering

  Author: Kate Swaffer Kaurna Country   The discourse of suffering has long been a topic of lived/living experience dementia advocates and activists. Most people who’ve followed me here for a while now will know I have been very vocal about it, and how it is harmful to people living with a dementia [...]

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